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Genopsin

Genopsin

ORDU ÜNİVERSİTESİ

Team Members

HASAN HÜSEYİN HALICI

ZÜLAL ATLI ŞEKEROĞLU

ZEYNEP ILGIN SUSUZLU

YİĞİT YAVUZ ÇINAR

Team Info
Genopsin Olarak Amacımız, Genetik Bakımından Çok Geniş Bir Yelpazesi Olan, Tedavisi Kesinlik Kazanmamış Hastalıklara Erken Teşhis Koymak Ve Erken Teşhis Üstünden Hastalığı Durdurmak Ya Da Yavaşlatmaktır. Bunu Diğer Yöntemlerden Farklı Olarak Gelişmiş Canlılığın İlk Evrelerinden Olan Embriyonik Dönemde Yapmayı Planlamaktayız. Fetal Testler Ve Genetik Danışmanlık Gibi Alanları Bir Araya Getirerek Doğacak Bebeklerin Hastalığı Taşıyıp Taşımadığını, Bu Hastalığın Ne Kadar İleri Düzeyde Olacağını Tespit Etmeyi Ve Burada Elde Ettiğimiz Verilere Göre Farklı Tedavi Yöntemleri Geliştirmeyi Amaçlıyoruz.\R\N\R\Ntemel Amacımız İleri Yaşlarda Fark Edilen Hatta Bir Ömür Fark Edilmeyen Retinits Pigmentosa Hastalığının Erken Dönemlerde Teşhis Edilmesi Ve Duruma Uygun Olarak Danışmanlık Yapılmasıdır. Yeni Tedaviler Gelişene Kadar Preimplantasyon Tanı Yöntemlerini Kullanarak Hastalığa Dur Diyebilir, Doğacak Bebeklerin Sağlıklı Ve Özellikle Bilimin Işığında "Aydınlık" Bir Dünyaya Gözlerini Açmayı Sağlayabiliriz.\R\N\R\Nher Nadir Hastalığın Olduğu Gibi Retinitis Pigmentosa Hastalığının Da En Büyük Düşmanı Bilinmezliktir. Hastalığa Karşı Doğru Bir Bilinç Oluşturmak, Tedavi Sunmak Kadar Önemlidir. Halka Retinitis Pigmentosa\'Nın Nasıl Bir Hastalık Olduğunu, Belirtilerini Ve Yapılabileceklerin Farkındalığını Aşılamak Da Projemizin Basamaklarındandır. Bunun Doğrultusunda;\R\N\R\N1-) Hastalığa Sahip Bireylerin Dış Dünyayı Gördüğü Gibi Tünel, Bulanık, Benekli Görünümü Optik Mağazalarından Temin Ettiğimiz Gözlüklere Uyarlayacağız. Ardından Farkındalık Oluşturmak İçin Gerçekleştirdiğimiz Sunumlarda İnsanlara Bu Gözlükleri Takarak Hastalığa Sahip Bireyleri Anlamaya Yönelik Bilinç Oluşturmayı Hedefliyoruz.\R\N\R\N2-) Gelişim Çağındaki Bireylerde Bilinç Oluşturmak İstediğimiz İçin Atacağımız İlk Adım, Liselerde Zihninin En Berrak Döneminde Olan Çocukları Hastalık İle İlgili Bilgilendirmektir. Ardından Üniversitemizin Kampüslerinde Öğrencilere, Ordu Büyükşehir Belediyesi\'Nin Davet Merkezi\'Nde Ebeveynlere Hastalığı Tanıtarak Farkındalık Oluşturmayı Planlıyoruz.\R\N\R\N3-) Başta Ordu Olmak Üzere Sonrasında Ulaşabildiğimiz Diğer Şehirlerdeki Ortaokul, Lise Ve Üniversitelere, Eczanelere, Reklam Panolarına Bilgilendirme Afişleri Asmak Hedeflerimiz Arasındadır.\R\N\R\N4-) Teknoloji Çağında İnsanlarda En Büyük Etkiyi Sosyal Medyada Oluşturacağımızı Düşünüyoruz. Sosyal Medyada Gördüğümüz Her Şey Bilinçli Veya Bilinç Dışı Olarak Zihnimizde Yer Edinmekte. Özellikle Gençlerin Kullandığı Instagram, Tiktok Gibi Uygulamalarda Hastalık İle İlgili Paylaşımların Yapılmasının Duyarlılık Geliştirmek İçin Verimli Olacağını Düşünüyoruz. Sosyal Medya Uygulamalarında Kullanmak Adına Hastalığa Sahip Bireylerin Dış Dünyayı Gördüğü Gibi Tünel, Bulanık, Benekli Görünümü Kamera Açıldığında Ekrana Yansıtacak Bir Efekt Oluşturacağız. Bu Efekt İle Çektiğimiz Videoları Kendi Hesaplarımızda Paylaştıktan Sonra Geniş Kitlelere Hitap Eden Sosyal Medya Temsilcileriyle İletişime Geçerek Bu Hastalık İçin Birlikte Farkındalık Oluşturmayı Teklif Edeceğiz.\R\N\R\N5-) Radyo, Televizyon, Podcast Ve Sohbet Programları İnsanlar Günlük İşlerini Yaparken, Vakit Geçirmek İçin Ve Bazen Sadece Ses Olması Adına Açılan Ve Yine De Orada İşlenen Her Bilginin İnsanın Dikkatini Çektiği Etkili Araçlardır. Genopsin Olarak Bu Programlar Aracılığıyla İnsanlara Ulaşmayı Planlamaktayız. Yüksek Reyting Oranı Olan Bir Televizyon Dizisinde, Bir Sabah Programında Ve Yolculukta Bize Eşlik Etmesi İçin Açtığımız Bir Podcastte Yalnızca Birkaç Dakikalığına Da Olsa Hastalığın Belirtilerinin Anlatılması, Hastalığa Sahip Olduğunun Farkında Bile Olmayan Yüzlerce Kişiye Ulaşmasını Sağlayacağına İnanıyoruz.\R\N\R\N6-) Futbol Maçlarında Açtıracağımız Afişlerin De Geniş Bir Kitleye Ulaşacağını Düşünüyoruz.\R\N\R\N7-) Ülkeminiz Farklı Üniversitelerindeki Öğrenciler Ve Öğrenci Toplulukları İle İletişime Geçip Bir Temsilci Seçerek Gerçekleştirdiğimiz Bu Etkinliklere Olanları Da Dahil Etmek, Temsilcimiz Aracılığıyla Farkındalık Kazandırmak Adına Kampüslerde Stant Açmak, Planladığımız Söyleşilerin Farklı Üniversitelerde Gerçekleşmesini Sağlamak Da Planlarımız Arasındadır.\R\N\R\N8-) Sunumlarımıza Katılan Kişilere Üzerinde "Retinitis Pigmentosa Gözleriniz Işığı Kaybetmesin" Sloganı Olan Sticker, Araba Kokusu, Anahtarlık, Magnet Vererek Bu Nadir Hastalığın Küçük De Olsa Bir Hatırlatıcısı Olmasını İstiyoruz.\R\N\R\N9-) İlkokul Ve Ortaokul Öğrencileri İçin Hastalık İle İlgili Bir Hikaye Kitabı Yazmak, Ulaşabildiğimiz Okullardaki Çocuklara Okuyarak Küçük Yaştan Çocukların Retinitis Pigmentosa Gibi Nadir Hastalıklara Karşı Duyarlılık Kazanmasını, Böylelikle Ebeveynlerinin De Bundan Haberdar Olmasını Amaçlıyoruz.\R\N\R\N10-) Anlaşabildiğimiz Markaların Ürün Paketlerine Bir Karekod Koymayı Planlıyoruz. Bu Karekod Taratıldığı Zaman Logomuzla Birlikte Ortaya Çıkacak "Retinitis Pigmentosa Gözleriniz Işığı Kaybetmesin" Sloganımız Ve Hastalık İle İlgili Bilgi İçeren İnternet Sayfası İle İnsanlarda Merak, Araştırma Ve Bilinç Duygusunu Geliştirmeyi Hedefliyoruz.\R\N\R\Ngenopsin Olarak "Hiçbir Gen Karanlıkta Kalmasın" Başlıklı Projemiz İle Retinitis Pigmentosa Hastalığına Sahip Bireyler İçin Daha Rahat Bir Hayat Oluşturmak İstiyoruz.
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Disclosure Notice



TEKNOFEST
“Law on the Protection of Personal Data”
Clarification Text
Privacy Policy

Definitions
The following terms that are employed in this clarification text respectively refer to:
Personal Data: Any information relating to an identified or identifiable natural person,
Law on the Protection of Personal Data (PDPL): The Law No. 6698 on the Protection of Personal Data that went into effect by being published on the Official Gazette on April 7, 2016,
TEKNOFEST: TEKNOFEST Aerospace and Technology Festival,
Stakeholder Institutions: Turkish Technology Team Foundation, Ministry of Industry and Technology of Republic of Türkiye and all stakeholder institutions contributing to the organization of the Festival,
Data Processor: Natural or legal person who processes personal data based on the authority granted by and on behalf of the data controller,
Data Controller: Natural or legal person who determines the purposes and means of the processing of personal data, and who is responsible for establishment and management of the filing system.

Data Controller
Pursuant to the PDPL, your personal data that you share as the addressee, member, scholarship student, volunteer, trainee, supplier, visitor, award recipient, supported, program partner and/or foundation employee/manager will be utilized within the scope specified below by the Stakeholder Institutions as the data controller.

Personal Data
Your personal data, which is provided to us by you or in the context of a business relationship with the following collection methods and can be processed by us, is as follows:
 
Data Category Personal Data
ID Name, Surname, ID No., Signature, Titre, Date of Birth
Contact Telephone No., Residential Address, E-mail
Location Location Info
Legal Act Legal Correspondence and Legal File Information
Physical Environment Security Camera Records
Computer Operation IP Address Information, Log Records
Risk Management Name, Surname, Title, Educational Records
Finance IBAN No., Income Records, Credit Card Expense Report, Expense Record, Property Records
Job Experience Diploma Information, Certificate-Course Information, Education Records, Family Education Records, Competition Rating Information, CV Information
Audiovisual Recordings Photography, Visual Records from Online Education Platforms
Penal Sentence and Security Precautions Criminal Records
Health Health Screening
Other (Proceeding Information)  


Personal Data Collection Method, Purpose and Legal Reasons
Your personal data, in line with the purposes designated in the law and Stakeholder Institutions’ policy;
  • Scholarship application forms,
  • Website contact forms of Stakeholder Institutions,
  • Competition application forms,
  • Startup application forms,
  • Other than the application via the website, also the documents delivered physically,
  • Communications via social media or directly or authorized communication channels and physical channels,
  • Any documents, e-mails, faxes, or mails that you have provided to us or requested by us,
  • Information obtained as a result of telephone conversations with authorized personnel who contacted you on behalf of the Stakeholder Institutions,
  • Membership, application, or feedback forms that you have filled electronically or physically,
  • Audio-visual recordings of trainings on online education platforms and face-to-face meetings to ensure continuity of education and to be used in next trainings,
  • CV information obtained through TEKNOFEST Career platform,
  • In addition, within the framework of legal reasons arising and executed based on the relevant legislation, contract, request, general practice, and the rules of good faith, your personal data, including special categories of personal data can be collected, processed and transferred by written, verbal or electronic methods or with your explicit consent, by the methods listed above and pursuant to different legal reasons for the purposes specified in this clarification text within the scope of the processing conditions and purposes specified in Articles 5 and 6 of the PDPL, for the purposes of the Stakeholder Institutions to continue its activities and in accordance with the basic principles prescribed in the PDPL.
Your personal data will be processed in accordance with the Stakeholder Institutions's mission and purposes, in accordance with the preservation rules, in line with the following activities of the Stakeholder Institutions.

Legal Reasons of Processing Personal Data
The Stakeholder Institutions processes data within the framework specified in the PDPL and pursuant to the law and rules of honesty in a way that is always related, restricted and balanced to the following purposes;
  • Providing scholarship support to undergraduate, graduate and doctoral students,
  • Organizing workshops for middle school and high school students,
  • Providing financial support to teams preparing for national and international competitions,
  • Supporting startups by providing investment, offices, mentors, prototype workshops and technical experts,
  • Conducting entrepreneurship and R&D studies for producing products, systems and components within the National Technology Initiative and supporting scientific studies realized in these areas,
  • Realizing and joining organizations, seminars, competition programs, workshop studies, educational platforms etc. that are organized with the natural persons and legal entities with whom the Stakeholder Institutions in collaboration,
  • Organizing seminars,
  • Ensuring the security of the physical environment,
  • Conducting communication processes,
  • Execution of social media studies,
  • Conducting internal audit, investigation, and intelligence processes,
  • Conducting risk management processes,
  • Ensuring the security of data controllers’ operations,
  • Accepting and evaluating suggestions for improving business processes, scientific studies, operations of the Stakeholder Institutions,
  • Conducting collaboration processes,
  • Conducting operations to ensure business continuity,
  • Conducting management operations,
  • Organization and event management,
  • Providing qualified personnel to the institutions and job opportunities to young people,
  • Conducting skills/career development operations,
  • Conducting audit/ethics operations,
  • Conducting processes related to management of emergency situations,
  • Conducting processes related to information security,
  • Processing audiovisual recordings of trainings to increase continuity and efficiency of trainings within online education platforms, using and sharing them in line with this purpose,
  • Providing the information needed by the relevant/authorized government institutions, legal or administrative jurisdiction authorities and law enforcement officiers.


Transfer of Personal Data
Your personal data is processed to firstly realize abovementioned purposes and on the condition that they are stipulated in the law pursuant to 8/2/a subclause of the PDPL and 5/1/, 5/2/a-c-ç-e-f subclauses of the PDPL, conclude a contract or they are being directly related to enforcement of the contract, realize the activities of the Stakeholder Institutions, ensure continuity of the online and face-to-face trainings, processing data is compulsory to fulfil a legal obligation, processing data is compulsory to establish, enjoy and protect a right, processing data is compulsory based one or more legal reasons for the legitimate interest of data controller  as long as they do not violate the fundamental rights and freedom of the relevant person and explicit consent is given when necessary and pursuant to Articles 8 and 9 of the PDPL, for the above-mentioned purposes, your personal data, competitor team and team member information may be transferred to third parties deemed necessary (affiliated institution/school, program partners, collaborating institutions, foundation managers/employees, legally authorized public institutions and organizations, legally authorized private legal persons or foreign countries) within the scope of the personal data processing conditions and purposes in order to continue the activities of the Stakeholder Institutions.
Pursuant to the Law No 8 and 9 of the PDPL, visual recordings of trainings on online education platforms and face-to-face meetings and personal data obtained during the training can be transferred to the people, who could not join the training, to ensure continuity and efficacy of the training, and those who receive recordings can send them to third parties depending on their preference.


Retention Period
Your personal data will be retained as long as you continue to join the activities affiliated with the Stakeholder Institutions and to follow the activities of the Stakeholder Institutions. It will continue to be retained for 10 years from the day the person’s relationship with the TEKNOFEST ends. In any case, your personal data will be removed or anonymized in accordance with the PDPL at the end of the retention period as set forth in the relevant legal framework.



The Rights of the Personal Data Owner
Pursuant to article 11 of the PDPL, everyone, in connection with herself/himself, has the right to;
a) Learn whether or not her/his personal data have been processed;
b) Request information as to processing if her/his data have been processed;
c) Learn the purpose of processing of the personal data and whether data are used in accordance with their purpose;
d) Know the third parties in the country or abroad to whom personal data have been transferred;
e) Request rectification in case personal data is processed incompletely or inaccurately;
f) Request deletion or destruction of personal data within the framework of the conditions set forth under article 7 of the PDPL;
g) Request notification of the operations made as per indents (d) and (e) to third parties to whom personal data have been transferred,
h) Object to occurrence of any result that is to her/his detriment by means of analysis of personal data exclusively through automated systems;
i) Request compensation for the damages in case the person incurs damages due to unlawful processing of personal data.

In order to exercise your above-mentioned rights, you can notify us through legal means by filling out the PDPL Request Form at the link below.

CLICK FOR THE PDPL REQUEST FORM.


Ortamahalle Gazi Ömer Bulu Street Canayakın Site Blok A No: 9 34040
Bayrampaşa/İstanbul
+90 212 501 9434
www.t3vakfi.org/en

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